Terminally ill FW boy gets home makeover

A Fort Worth family going through a difficult time was gifted something special Sunday -- a home makeover.

10 year old Tristan Law has terminal brain disease.

He was diagnosed with metachromatic leukodystrophy when he was nine years old.

Since then, his life has changed with trips back and forth from his home in Fort Worth to his treatments in Pittsburgh, Pennsylvania.

Sunday, he and his family got a break from their normal routine to see how volunteers made their house into a special place to call home.

The last 16 months have been full of ups and downs for Tristan Law and his family.

He ws diagnosed with a rare genetic brain disorder in October 2016.

Doctors told his parents there is no cure.

"Obviously I wanted a miracle, but that wasn't going to happen. It was just really hard now that we can't do anything else, no treatments, no other medicine can make him right so it's been really hard to accept that, but this is the best it can be," said Francoise Law, Tristan's mom.

As the disease has progressed, Tristan now needs help with what used to be everyday simple tasks.

"He's ten. Hopefully he can grow a lot older. We don't know. We don't know the progress of this disease. We don't know how long this disease will hold," said Tristan's mom.

The family has been traveling back and forth to Pittsburgh for a stem cell transplant and chemotherapy, but not Sunday.

Sunday was full of excited squeals and smiles as the family saw for the first time their home makeover, complete with new rooms for Tristan's younger twin brothers decorated with trains and trucks.

Dozens of volunteers helped make the home more accessible for Tristan with a modified bathroom, a therapy room and a new bedroom for Tristan with his favorites - Legos and Batman.

Mom and dad got a new room too.

The surprises made Tristan smile once again.

"My day is whether he's having a good day or not. If he's having a good day, I'm having a great day because that's when I can see my son again. When he's not, then it's hard," said Cedric Law, Tristan's Father.

"It feels like it's not enough, but I know that it is so much to them. I know how much this means to them. I wish there was more we could do. I wish I could take this all away from them, but we can't so for me, personally, it's my best," said Erica Jones with Sunshine Spaces, the group responsible for the makeover.

Dozens of volunteers and local businesses made Sunday's event possible, including some of Tristan's teachers and classmates who helped raise $800 toward the makeover.